Attendannce on 5th NURSING WORLD CONFERENCE 2021 (Orlando, USA)
I attended and did presentation with the title “Effect of a tailored multidimensional intervention on the care burden among family caregivers of stroke survivors: study protocol for a randomized controlled trial “at the 5th NURSING WORLD CONFERENCE (NWC 2021) October 18-20, 2021 in Orlando, USA.
Introduction: Caring for stroke survivors creates high levels of care burden among family caregivers. Previous initiatives at alleviating the care burden have been unsuccessful. The proposed study aims to evaluate the effect of a tailored multidimensional intervention on the care burden among family caregivers of stroke survivors. Based on the perceived needs of family caregivers, this intervention takes into account scientific recommendations to combine three different approaches: skill-building, psychoeducation and peer support. To ensure feasibility of the intervention and the implementation process, the intervention was designed by an interdisciplinary team including nine academic researchers from different specialties, as well as eight intervention nurses with a bachelor’s degree in nursing and with work experience in hospital stroke units. The designing process for each family caregiver in the intervention involved the following five subsequent steps: (1) intervention nurses assess the caregiver’s needs using the Family Needs Questionnaire-Revised (FNQ-R; (2) caregiver’s needs are reviewed, identified and summarized by the interdisciplinary team; (3) telephone interviews between the intervention nurse and the caregiver are held to prioritize the summarized needs; (4) the interdisciplinary team then creates an intervention plan based on the summarized needs in line with the appropriate skill-building and psychoeducation strategies likely to fulfil the needs identified. A peer support session is included in the intervention plan as an essential strategy; and (5) the intervention plan is shared with the caregiver to ensure participant collaboration.
Methods and analysis: Using a prospective, randomized, open-label, parallel-group design, 110 family caregivers will be enrolled from Dakahlia Governorate, Egypt between December 2019 and May 2020, and randomly assigned to either the intervention group or the control group. The tailored multidimensional intervention will be administered for 6 months, including three home visits, six home-based telephone calls and one peer support session. The primary outcome is the care burden as measured using the Zarit Burden Interview. Secondary outcomes include changes in the family caregivers’ perceived needs, coping strategies (Brief-Coping Orientation to Problems Experienced) and quality of life (WHO Quality of Life-BREF). Outcome’s evaluation will be conducted at baseline (T0), month 3 (T1) and month 6 (T2). Independent t-test will be performed to compare the mean values of study variables between the two groups at both T1 and T2. After adjusting for confounding variables, analysis of covariance will be used to assess the effect of the intervention. In addition, repeated measures analysis of variance will be conducted to assess changes in effect over time.